This assignment will be structured as a reflection on stigmatization and normality in general, but with a touch of hearing impairment as a focus. I will go through some different approaches to these problems, and reflect upon them.
Do you want to broaden the normality area?
To broaden the normality area might require habituation of things currently not in the area. The blunt and naive way would be to increase the number of users of supportive tools and design. For example, if everybody prefers a ramp as an entrance to a building, then there is nothing non-normal about using that ramp. The same goes for subtitles (which happen to be my topic for the group work in this course): they are so prevalent today that it is not particularly peculiar if someone uses subtitles. Now, we have been lucky to have some of these tools being so successful that they have been included in what is normal. However, only a limited amount of things get that. We just broadened the normality slightly. Is habituation of seeing currently non-normal things the only way to broaden the normality area? If it is, that would require a huge amount of habituation of an almost infinite amount of currently non-normal things and behaviours. It does not seem that practical.
Perhaps what is normal is not the problem. The effect of someone or something being outside the normal spectrum is mainly some looks from people. What if we accept that part and treat it as a part of being human (looking at things that stand out). Our vision is so good at finding “inconsistencies” that apparently require our attention – and we move our eye to that place. I suspect that this part of us will have to be accepted.
With that said, after that initial eye glance, we have possibilities to change our behaviour I think.
Is the initial eye glance always bad? I can imagine people wanting to attract attention and using fashion as a way to do that. I guess the difference is that with fashion you can choose how much you want to be noticed. There is often no such choice when it comes to dealing with some disability.
I guess accepting the (so ingrained in us) stares can be a challenge in itself, but I think we have to accept it.
So, so far, I have concluded (well..) that 1. broadening normality by habituation requires exposing people to an infinite amount of ‘deviations’; and 2. We can’t stop the very human thing of the eye glance to things that stand out.
What about any workarounds for these problems?
For the ‘initial eye glance’, we could try hiding that… which leads my mind to: Sunglasses! With sunglasses you can look wherever you want without people noticing that much.
This might be a naive solution but I just want to introduce the idea that it is possible to hide these eye glances.
Unfortunately, I do not have any other (more feasible) solution up my sleeve. Let us leave the initial eye glance topic for awhile.
Next up is discussing what we can do about the phases following the stare.
What about workarounds for the ‘infinity’ issue for habituation? Let’s consider the possibility tha we do not have to bump into the infinity issue. If we say that different combinations of known things does not – when put together – create a new unknown thing. We humans are often fine with dealing with infinite combinations of things if the parts that make up the combinations are all known to us. I am not startled when a person wears a particular sweater combined with a pair of jeans just because I have not seen that combination before. So, if we can habituate (-> normalize) bigger concepts, we might be able to cover large amounts of variations within these concepts. A simple example would be to focus on normalizing the group “hearing-support” instead of it’s individual variations. In that way, we create a group that is bigger, which means that it has a better chance of being seen as prevalent enough to enter the normality area.
It could be something to think about more.
When it comes to to designing for minimization of stigmatization, there are some things to think about.
The simplest solution conceptually is universal design. However, not all products are that successful enough to make their way into the mass market.
I can think of a few approaches of reducing stigmatization:
- Hiding the activity from people
- Stealthing the activity (hiding in public)
- Making the activity cool enough to distract from disability
- Shielding user from surrounding reaction (people).
If we think of 1. hiding the activity. That is a bit like hiding yourself because you can’t deal with the situation. It does not sound like a very noble solution, but I think it depends on the situation and the person. Some things you want to keep to yourself, or at least have to option to. If it is possible to move the activity to a private place and time, it should be an _option_. It might not make the one with the disability more comfortable with it, but sometimes it feels good to get to keep something for yourself. This way of hiding can be beneficial in the way that it lets you choose whether to tell anyone about your disability or not. For hearing impairment, this could result in you choosing to way of living that enable you to listen in a quiet place instead of in a place of noise.
2. Stealthing the activity (hiding in public). Eye lenses are a good example. (well, the example is a bit silly because glasses are not stigmatized that much today.).
For hearing impairment, this could be something like an invisible hearing aid.
Another option is to make excuses about not hearing; for example “I am tired today”. Or, you could just nod even though you did not hear.
3. Making the activity cool enough to distract from the disability.
The idea was that you had some supportive tool that in itself attracted attention, but not due to its supportive functions. Then the user of the tool could “explain away” negative thoughts about stigmatization through “it must be the fancy looks of the tool, and not me they are looking at”. It could go the other way around though: that the user feels extra stigmatized because of the increase amount of attention due to the fancy tool.
4. Shielding user from surrounding reactions.
This is if you have a noticeable supportive tool, but you shield yourself in some way from other’s reactions. This could embody itself as trying to come up with rational explanations for people’s behaviour (glances etc.): “Oh, they were probably looking at that car behind me”. Another way would be to try to not think about other people’s reactions, and therefore not specifically look for their reactions. Perhaps you could train yourself for this.
This point is difficult to apply to hearing impairment, since hearing so often has to do with people speaking with you. You would not want (or could) ignore the person you are speaking to.
I think applying these points to solving the needs of people with a hearing impairment is difficult. Hearing is often part of social situations.
So, instead of supportive tools, let us focus on what we can we do with the environment.
Let me mention, again, the wonderful subject of Universal design.
So much can be done to acoustically treat a place for better audibility of speech. If you design away the bad acoustics, you actually mitigate the disability (thinking that it is not a disability if it is not a problem). For example, you could design the floor plan in a restaurant to only have a limited amount of tables in several rooms (instead of one big room with lots of people). You could have table cloths on the table to reduce noise from cutlery and porcelain; and quiet furniture (chairs not making noise when dragged on floor). You can make sure that people’s faces are well-lit at the tables – making for easier lip (and body language) reading to compensate for bad hearing. There are so many things you can do.
The best thing with this approach is that you not only remove (well, ideally) the room for stigmatization, but you actually alleviate the actual disability which naturally makes the person feel better.
And I am sure people without a hearing impairment would love this too.
So, I just moved the problem of stigmatization for hearing impairment to an environmental problem. Good or bad? Well, certainty a challenge.
Somehow, it seems the ideal way to deal with stigmatization is to design for reduction of the disability in the first place.
This reflection on the subject has perhaps given rise to more questions than I started with, but I think that is fine. The more we spend time on the problem, the more we learn about it. I will not say that reflecting is enough of course, but thinking about the options before designing can certainty help you avoid some pitfalls.
To conclude I want to say that the problem of stigmatization is a type of problem I am not used to dealing with when it comes to design (design happens to come down to technical limitations often). This course has thrown this new type of problem at me and now I have to learn how to think about it – which is quite rewarding.