“If all those assumptions disappeared and people were more aware and more informed about everything, that would be great.”

Almost everyone wants to be healthy. No illnesses, no injuries, no pain. Most humans are also empathic beings, and we don’t want ourselves or others to hurt. So when we encounter people who suffer or seem to suffer from a disability or an injury, we pity them.

If you’re in a wheelchair, then you can’t walk. If you can’t walk, you might be in pain. At least something’s not right. Some people may try to imagine what it’s like not being able to walk, and think “Wow, that must really be hard! I could never get around without legs.” They can’t imagine to not being able to walk, so obviously it has to be very hard for the person in a wheelchair to live a normal life! So they pity the disabled person, and maybe they try to help them. How nice of them, isn’t it? The poor person in a wheelchair is a victim, and victims deserve to get help. Most people would want help if they needed it, and as a victim, you need help.

If you’ve got Down’s syndrome, there’s a big probability that you’ve got a intellectual disability. You can’t be expected to understand everything. So in a way, it’s not very surprising that many people treat people with a probable intellectual disability like they’re children. After all, children can’t be expected to understand everything, either. Even if the person doesn’t have an intellectual disability but just talks differently, it can be easily misinterpreted as if the person has reduced intelligence. Maybe some kind of instinct kicks in; children have to be taken cared of, just like people with Down’s syndrome or similar, or even some elderly people, really. (It happens quite a lot that people talk down to seniors, too.) So they all fall into a similar category, a “child-like” category.

Humans are herd animals, we like to belong in a group. When someone looks and/or acts differently we tend to notice. While I would like to believe that most of us don’t want to immediately shun or attack people because they’re different, it’s difficult not to stare. It’s a reflex to look at something that attracts attention after all. Since most people are (or at least look) normal (otherwise it wouldn’t be the norm), visibly disabled people attract attention. One could think that most people should have seen many people in wheelchairs, missing limbs, or having Down’s syndrome, but I think that since disabled people are in minority, they still look “exotic” enough to attract attention. Thus, it’s very hard not to stare, or at least give the person a few too many glances. In some circumstances you might expect the disabled person to want or need help from you. It can’t hurt to be on the alert for such a thing, right? Better keep an eye on the person to see if they’ll need help.

In the video “Disability, the Truth” (https://www.youtube.com/watch?v=MJ4JOomkyNI), we get another viewpoint, the one of disabled people. We learn that attitude is everything. It’s not about what you can’t do, but what you can. Disabled people still live their lives, they just do it in a slightly different way than most of us. They don’t constantly need help, they manage well enough on their own. As one person says in the video: “People think that I can’t live independently as a deaf person, that I can’t drive, that I can’t speak and other things like that, which I actually can do.

I think that this is one of the biggest issues with the stigmatizing of disabled people: ‘Abled’ people lack understanding of the capabilities of disabled people. They see the problems, what they CAN’T do, instead of what they CAN do. It’s quite understandable, though. Not everyone knows a disabled person, many just have their own lives to compare with. Personally, I can’t imagine how I would live life as usual if I were blind, but as we see in the video it’s entirely possible: “[…] it’s like they don’t think that blind people can cook.” I think that there would be a lot less stigmatization if the public was given more information about this, just like the video provides. Perhaps it could be shown in elementary school, and the teachers could have a discussion with the pupils about it. This could help people to realize that they shouldn’t pity disabled people, and only help them if they ask you (and thus actually need help).

Apparently some people ‘help’ disabled people without even asking them if they need it first. Apparently they don’t realize that they’re not helping and just make the disabled person feel less helped: “When you’ve got a disability it’s hard to get around, but when someone pushes you it’s like they’re insisting you on doing something without you allowing it, but they’re taking away your control of what you can do.” Besides that this shouldn’t even have to be an issue since it should be common sense to not move someone without their permission, I think that some comedy movies might be of use regarding this. It might give some people food for thought if there was a scene when someone ‘helps’ an old or disabled person across the street, only to have they say that they weren’t going in that direction. In fact, I think that having more disabled characters in movies, TV shows, and similar would also help with normalizing the disabled. I’m sure people would stare less on the visibly disabled if they were a more usual sight.

In summary, I believe that we need more awareness of disabled people’s lives.

3 thoughts on ““If all those assumptions disappeared and people were more aware and more informed about everything, that would be great.”

  1. I really like your text, and totally agree with what you say in the last paragraph. What you wrote about staring at disabled people also made me think a liitle bit: the “staring” at people looking / behaving different/ly is a more delicate problem than it first seems. Is purposefully avoiding looking at the person better? Not looking can be as visible and stigmatizing as looking with too much insistance after all. I often have this problem when I happen to notice a person with a disability, because I don’t want him / her to think I am staring, and at the same time I don’t want him / her to believe I am making abstraction of them… And can we really avoid noticing altogether?

    • Thank you! I agree with you, I also think it’s hard to know how to behave around some people with a visible disability, I feel rude whatever I do. I think that at least one way to reduce this issue would be to normalize the sight of disabled people by showing them more in movies and such.

      For example, I think that ‘ICA-Jerry’ (a guy with Down’s syndrome who stars in some ICA commercials) is a great example; he shows everyone that a disabled person can be just like the other ICA personnel. (Note that I haven’t actually watched that many commercials, I’ve just heard about him.)

      I’ve also read that one of the casts in the TV show Jackass is a dwarf, and apparently he’s a good role model for other dwarfs: “We don’t want to be reminded that we’re small all the time. We just want to be people, looked at on the same level as everybody else. And you know who gets that more than any other progressive or serious property? Jackass. Yep, Johnny Knoxville’s magnum opus is what I point to when people ask about models for dwarf tolerance. Sure, maybe they’re running around in diapers or belly-flopping onto alligators or doing some other stupid shit — but they treat Wee Man as an equal. He’s one of them. He has to do embarrassing stuff, but so does everyone else.” (http://www.cracked.com/personal-experiences-1460-5-insane-realities-my-life-as-dwarf_p2.html)

      • Oh, that’s really good! It makes think of the actor playing Tyron Lannister on Game of Thrones: it’s really cool to finally see a dwarf (and I don’t mean that in an insulting way) playing not only a good character, but a smart one, with as many abilities as the other protagonists and living the same kind of life as them!

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